The Mouse-Proof Kitchen

Anna and her husband Tobias eagerly anticipate the arrival of their first child. When Freya is born, the parents learn she will never develop the way most children do, that she will live a short and difficult life. Anna and Tobias, nevertheless, buy an old home in France and decide to take each day as it comes with Freya.

I suspect this is a very honest look at the anxieties and pain and burdens and resentment and, yes, deep love that comes with having a child who doesn't grow and change as expected. It's a beautiful story of the way regular people try to face, then shirk, then try to face again enormous, lonely, and unexpected responsibilities, full of the frustrations and anger and joy that these responsibilities bring.